Requesting a unique personal identifier or providing a souvenir incentive did not affect overall consent to health record linkage: evidence from an RCT nested within a cohort
Requesting a unique personal identifier or providing a souvenir incentive did not affect overall consent to health record linkage: evidence from an RCT nested within a cohort
It is unclear if unique personal identifiers should be requested from participants for health record linkage: this permits high-quality data linkage but at the potential cost of lower consent rates due to privacy concerns.Drawing from a sampling frame based on the FAMILY Cohort, using a 2 × 2 factorial design, we randomly assigned 1,200 participants to (1) request for Hong Kong Identity Card number (HKID) or no request and (2) receiving a souvenir incentive (valued at USD4) or no incentive. The primary outcome was consent to health record linkage. We also investigated associations between demographics, health status, and postal reminders with consent.Overall, we received signed consent forms from 33.3% (95% confidence interval [CI] 30.6-36.0%) of respondents. We did not find an overall effect of requesting HKID (-4.3%, 95% CI -9.8% to 1.2%) or offering souvenir incentives (2.4%, 95% CI -3.1% to 7.9%) on consent to linkage. In subgroup analyses, requesting HKID significantly reduced consent among adults aged 18-44 years (odds ratio [OR] 0.53, 95% CI 0.30-0.94, compared to no request). Souvenir incentives increased consent among women (OR 1.55, 95% CI 1.13-2.11, compared to no souvenirs).Requesting a unique personal identifier or providing a souvenir incentive did not affect overall consent to health record linkage.
- University of Hong Kong China (People's Republic of)
- University of Ottawa Canada
- University of Hong Kong (香港大學) China (People's Republic of)
- Li Ka Shing Faculty of Medicine, University of Hong Kong Hong Kong
Adult, Male, Motivation, Informed Consent, Adolescent, Medical Records Systems, Computerized, Randomized, Age Factors, Data linkage, Middle Aged, Health record linkage, Consent, Cohort Studies, Young Adult, Sex Factors, Humans, Female, Medical Record Linkage, Incentive, Aged, Randomized Controlled Trials as Topic
Adult, Male, Motivation, Informed Consent, Adolescent, Medical Records Systems, Computerized, Randomized, Age Factors, Data linkage, Middle Aged, Health record linkage, Consent, Cohort Studies, Young Adult, Sex Factors, Humans, Female, Medical Record Linkage, Incentive, Aged, Randomized Controlled Trials as Topic
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