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Journal of Clinical Epidemiology
Article
License: CC BY NC ND
Data sources: UnpayWall
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Journal of Clinical Epidemiology
Article . 2017 . Peer-reviewed
License: Elsevier TDM
Data sources: Crossref
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HKU Scholars Hub
Article . 2017
Data sources: HKU Scholars Hub
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Requesting a unique personal identifier or providing a souvenir incentive did not affect overall consent to health record linkage: evidence from an RCT nested within a cohort

Authors: Michael Y. Ni; Tom K. Li; Rex W.H. Hui; Ian McDowell; Gabriel M. Leung;

Requesting a unique personal identifier or providing a souvenir incentive did not affect overall consent to health record linkage: evidence from an RCT nested within a cohort

Abstract

It is unclear if unique personal identifiers should be requested from participants for health record linkage: this permits high-quality data linkage but at the potential cost of lower consent rates due to privacy concerns.Drawing from a sampling frame based on the FAMILY Cohort, using a 2 × 2 factorial design, we randomly assigned 1,200 participants to (1) request for Hong Kong Identity Card number (HKID) or no request and (2) receiving a souvenir incentive (valued at USD4) or no incentive. The primary outcome was consent to health record linkage. We also investigated associations between demographics, health status, and postal reminders with consent.Overall, we received signed consent forms from 33.3% (95% confidence interval [CI] 30.6-36.0%) of respondents. We did not find an overall effect of requesting HKID (-4.3%, 95% CI -9.8% to 1.2%) or offering souvenir incentives (2.4%, 95% CI -3.1% to 7.9%) on consent to linkage. In subgroup analyses, requesting HKID significantly reduced consent among adults aged 18-44 years (odds ratio [OR] 0.53, 95% CI 0.30-0.94, compared to no request). Souvenir incentives increased consent among women (OR 1.55, 95% CI 1.13-2.11, compared to no souvenirs).Requesting a unique personal identifier or providing a souvenir incentive did not affect overall consent to health record linkage.

Keywords

Adult, Male, Motivation, Informed Consent, Adolescent, Medical Records Systems, Computerized, Randomized, Age Factors, Data linkage, Middle Aged, Health record linkage, Consent, Cohort Studies, Young Adult, Sex Factors, Humans, Female, Medical Record Linkage, Incentive, Aged, Randomized Controlled Trials as Topic

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    This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
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citations
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
5
Top 10%
Average
Average
Green
hybrid