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"<< Background >>Parkinson's disease is possibly one of the most complex and varied pathologies, which difficult their treatment. Its neurodegenerative nature means that individuals living with the disease and their loved ones have to cope continuously and over many years with different symptoms and difficulties associated.In this sense, it is crucial for members of multidisciplinary care team of Parkinson to have the most detailed knowledge of the pathology as possible, of the advances in its treatment and the applications that new technologies make possible in this field.Therefore, ""Improving the availability of high quality learning opportunities for adults"" is a deeply thought-out choice and aims to reflect the need to provide professionals with quality knowledge in the field of Parkinson's disease and to facilitate their access by taking advantage of the opportunity that new teaching methods (e-learning) offer us, thus being able to reach a wider and more diverse audience (different countries, cultures...).<< Objectives >>SUPER project aims to provide digital multidisciplinary training to effectively face: 1) The expected increase of PPD (estimated high prevalence). 2) The progress of PD (due to ageing population) which has an economic impact on the health and care systems, society, professionals, caregivers, PPD themselves. 3) The lack of knowledge on IC models adapted to the real needs of PPD and their relatives/caregivers, through providing training for members of multidisciplinary teams. 4) The PPD’s poor digital skills related to health and care management which has a direct link with their autonomy. In such way, SUPER project is expected to have a positive impact on the triple-helix actors involved in PD: improving the work life of multidisciplinary care team’s members by providing them useful tools and knowledge to implement in their daily work routine; enhancing families’ with Parkinson’s health and social care outcomes increasing the QoL and autonomy, building their digital skills at the same time.The main objective of SUPER project is to build knowledge, competences and skills of multidisciplinary care team members on the IC approach for PD through a co-designed training course and e-learning platform. Additionally, the specific objectives are the following: - Design co-validated content and methodology of the training course to deliver support through an integrated approach. - Increase knowledge on the IC models of care and their design, application and delivery. - Encourage the collaborative work among social and health care professionals and PPD by developing innovative online resources and tools.- Promote families’ with Parkinson’s empowerment in the management PD. - Increase visibility of PD and the associated effects - Increase the QoL of families living with Parkinson’s. - Promote PPD’s autonomy and digitalization increasing their QoL. - Enhance SUPER partners’ capabilities to develop and deliver relevant training.- Raise awareness and skills of communities, organizations, and other stakeholders on the newly produced training and create relevant networks across the EU.<< Implementation >>The main activities that will be implemented are the following:- Development of a deeper understanding of the exact training needs, gaps and requirements of health and social care professionals have regarding the IC on PD (R1). And also, to create the basis of the training curriculum (R2) and e-learning platform requirements (R3) by co-design sessions with main actors. The report will highlight shortages, needs and good practices and will discuss the training requirements that professionals need and should be taken into consideration when designing the training course. For this aim, the main activities will be: 1) Review of available training opportunities and programs for professionals in each partner country, and 2) Focus groups with professionals and PPD/relatives and caregivers. - Development of the contents and materials of the training course about IC for PD addressed to health and social care professionals. Based on the R1 and a literature review carried out by the consortium, the training course will be provisionally structured under the following learning modules: 1) Knowledge on the Parkinson’s disease; 2) Transformation towards IC. 3) Professional competences to provide IC; 4) Care delivery from an integrated approach; 5) Digitalization in the healthcare sector. -Design of an e-learning platform containing the training course for health and social care professionals (R3). It will also include resources, news, links to interesting information as well as evidence-based practices related to IC and PD. In this regard, the R1 and R2 will be also uploaded in this platform, understanding them as a valuable resource for different stakeholders. In addition, a space of interchange between interested stakeholders on how to generate the change towards IC will be available. Another interesting space will be created where professionals will have the opportunity of being in communication with PPD, relatives/informal caregivers. Professionals could prescribe activities, reading material, etc. and being in contact with PPD even monitoring them.<< Results >>The SUPER project will produce the following results: - A map of person-centred, integrated care programs for families living with PD in Europe and beyond. An ecosystem mapping and training methodological framework: Integrated care in PD (R1). This will be carried out by exploring the existing training and specific needs as well as knowledge gaps as perceived by social and health care professionals, and families living with Parkinson’s. This project intends to develop on-line training, the report will include shortages, needs and good practices concerning IC and digital skills in PD. In addition, this result will be accomplished by completing participatory sessions with members of multidisciplinary teams, and families living with Parkinson’s in four different European countries (Spain, Netherlands, Italy and France). SUPER project will encourage the empowerment and the sense of responsibility of the target groups through the participatory method, and it will allow care teams to focus and meet perceived and objective needs.- SUPER training course about IC for PD (R2): The training course will be developed on the basis of the aforementioned result and meeting the needs of all target groups. It will include comprehensive training content mainly delivered through presentations, and supported by other sort of tools such as a common glossary for all the professionals, videos, case studies, exercises, and/or reading material. Specifically, the course will provide knowledge on PD, transformation towards IC, professionals competences to properly deliver IC, and care delivery from an integrated perspective. This course will be innovative for different professional profiles across Europe since there is a lack of training and learning opportunities for health and social care professionals on IC for PD. In addition, specific guidelines for the implementation the training course (R2) allowing transferability and scalability of the course to other health and social care contexts will be developed. - SUPER e-learning platform (R3) including the training course for members of multidisciplinary care teams, project results, and also it will contain a section dedicated to the communication between professionals and PPD/informal caregivers across Europe. This constitutes an added value as it will allow professionals to suggest activities, recommended readings or resources to PPD/informal caregivers. In addition, this e-platform will be a valuable asset by the chance of learning from each other allowing the creation of networks between stakeholders who could be interested in the field of IC and PD. The e-learning platform may be useful for a wide range of professionals, patients and caregivers in the partners' countries. In addition, other stakeholders from European countries (and beyond) facing the burden of PD not represented in the consortium will be benefited.- A co-validated training course (on-line modality). To this aim, at least 170 health and social professionals (50 APM, 40 ISRAA, 50 IFIC and 30 France) will be trained on IC in PD and will give their feedback on the effectiveness, utility and quality of the materials and results produced as well as any possible modifications or improvements. Validations will allow the applicability, transferability and scalability of the SUPER products across Europe. - Awareness raised on the PD and IC model through the development of several dissemination actions at national and international level mainly addressed to all those people linked to the disease and other chronic/neurological conditions, integrated care or healthcare services policy and/or research. At least 50 policy-makers, 100 PPD and families/informal caregivers, 500 professionals and researchers will be reached out by the dissemination activities of SUPER project, particularly through IFIC’s world-wide network of over 30,000 members."
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