"<< Background >>The World Health Organization takes a broad view of health, stating that ""health is a state of complete physical, mental and social well-being and not merely the absence of disease and infirmity"". In doing so, it draws attention to the need to view health as the outcome of influences in addition to biomedical health care and management. Such a view is equally applicable to people with intellectual disabilities.World Health Organization, International Association for the Scientific Study of Intellectual Disabilities (IASSID) and Inclusion International (II) prepared a summative report on healthy ageing for adults with intellectual disabilities. In this report [1], Disadvantaged subgroups of ageing adults with intellectual disabilities are at particular risk. In many nations, older adults with severe and profound impairments are disregarded or institutionalized. Housing is often inadequate and health provision neglected. Older adults with mild impairments are often marginalized and not provided with minimal supports needed to be productive members of their societies. Rehabilitative services, vocational opportunities, and quality old-age services are not provided. In many nations, older women with intellectual disabilities experience challenges that are particular to their sex. Their specific needs are often overlooked or dismissed. Older adults with co-morbid conditions experience particular problems and their compound physical and/or mental health conditions not addressed.Nations vary in their recognition of and provision for adults with intellectual disabilities. In many cultures, persons with disabilities may not hold a valued status in societal terms.Consequently, they may have reduced access to the basic necessities of life, including housing, work opportunities, nutrition, and health care, which are associated with ageing in good health. Barriers to the acceptance of persons with intellectual disabilities can include prejudicial beliefs about the nature and causes of disability, poorly organized services or a lack of government policies favouring supports for persons with disabilities, inadequate health and social services, and poorly trained professionals or practitioners. Poor health status and unfavourable economic conditions affecting the entire national population may also be barriers. Such barriers can be overcome with enlightened public policies, educated professionals and carers, determined advocacy, and other special compensatory efforts.Older persons must be full participants in the development process and also share in its benefits. No individual should be denied the opportunity to benefit from development. Likeother people, older people with intellectual disability may have significant physical health needs, reflecting the social and economic circumstances which have shaped their daily lives. Environments that foster healthy social relationships, trust, economic security, sustainable development and other factors related to advancing the health and well-being of citizens have been identified by governments as priorities. Healthier communities with greater social cohesion produce healthier citizens. Further, the effect is cumulative and lifelong, with good health in childhood affecting and contributing to good health in older age. The UN International Plan of Action on Ageing asserts that each country must respond to demographic trends and the resulting changes ""in the context of its own traditions, structures, and cultural values . . ."" [2]. This view is equally applicable to older people with intellectual disabilities. Focusing on ageing and intellectual disability implies that all policies affecting people with intellectual disabilities are developed in such a way as to maintain, if not improve, their situation as they age.Resources:1: https://www.who.int/mental_health/media/en/20.pdf2: http://www.un.org/esa/socdev/documents/ageing/MIPAA/political-declaration-en.pdf<< Objectives >>In 1991, the United Nations General Assembly adopted the United Nations Principles for Older Persons (resolution 46/91), the eighteen principles of which fall into five clusters concerning their status:1. Independence2. Participation3. Care4. Self-fulfillment5. DignityThe population of older adults in the European Union is increasing during the last 20 years. Increasing age is but one of many factors associated with disparities in health access and outcomes, lower socioeconomic status, geographic proximity to health professionals, and having a disability. Moreover, within the population of those with disabilities, persons with intellectual disabilities (ID) are further disadvantaged. The potential synergistic effect of increasing age with concomitant membership in a vulnerable population increases the risk of experiencing poor health [1].Owing to marked increases in life expectancy for individuals with ID in recent decades, the life expectancy of adults with mild ID is rapidly approaching near parity with the general population. Persons with moderate or severe ID now routinely live into their late 60s and late 50s, respectively [2]. Furthermore, older adults with Down syndrome are consistently living beyond their late 50s, with sporadic reports of individuals living to their 70s and even early 80s. Consequently, the relatively rapid increase in a new population of ageing adults with complex medical and mental health problems has resulted in inadequate geriatric health care provision [3].""Training of family members and guardians for the inclusion of ageing adults with disabilities"" project will aim to develop non-formal education materials for family members and legal guardians for the achievement of secure ageing and empowerment of full and effective participation in social life. Because the social inclusion of ageing adults with disabilities is still a pending and not fully achieved policy of the European Union.Concreate objectives of the project are:- Develop a toolkit on how to train parents and legal guardians of ageing adults with disabilities- Develop a parental education guidebook to encourage and support parents, family members and legal guardians of ageing adults with intellectual disabilities- Create educational spot videos for families- Design a comprehensive online resource with a categorized database- Prepare a policy recommendation report about the process of problem-solving related to provided services for ageing adults with disabilitiesResources:1: Havercamp SM, Scandlin D, Roth M. Health disparities among adults with developmental disabilities,. Public Health Rep. 2004;119(4):418-426152197992: Bittles AH, and others. The influence of intellectual disability on life expectancy. J Gerontol A Biol Sci Med Sci. 2002;57(7): M470-M472120848113: Janicki MP, and others. Mortality and morbidity among older adults with intellectual disability: health services considerations. Disabil Rehabil. 1999;21(5-6):284-29410381241<< Implementation >>Main activities are:1. Preparation of the bilateral agreements between the project coordinator and each partner organization 2. Monitoring all project activities3. Managing the pre-defined work plan and the deadline for all tasks4. Managing the administrative and financial report process for every 6 months5. Organization of TPMs6. Preparation of the minutes of TPMs and updating the action plan 7. Preparation of an effective communication strategy8. Creation of a Cloud Drive file sharing platform9. Preparation of financial and management reports for every 6 months10. Preparation of the dissemination plan and dissemination report with evidence for every 6 months11. Creation of the final dissemination report 12. Preparation of an internal quality evaluation plan and internal quality evaluation surveys 13. Creation of the final quality evaluation report 14. Designing paper brochure of project results and other dissemination materials15. Setting up advisory board per country with experts 16. Creation of the project web platform 17. Preparation of a sustainability plan and template 18. Preparation of the sustainability report of the project 19. Production of the toolkit on how to train parents and legal guardians of ageing adults with disabilities (R1)20. Production of the parental education guidebook (R2)21. Production of the educational spot videos for families (R3)22. Production of the online learning HUB for family members of ageing adults with disabilities (R4)23. Production of the policy recommendation report (R5)24. Arrangement of pilot training activities with target groups (use produced project results in pilot training)25. Arrangement of the multiplier event ""Seminar: Active Ageing and Wellbeing for People with Disabilities"" in each partner country 26. Arrangement of the multiplier event ""Final Conference: Inclusion of ageing adults with disabilities""27. Preparation of the progress, interim and final report of the project<< Results >>Outcomes of the project are:- Toolkit on how to train parents and legal guardians of ageing adults with disabilities- Parental education guidebook- Educational spot videos for families- Online learning HUB for family members of ageing adults with disabilities- Policy recommendation report- Project website- Paper brochuresTotally 240 people will be trained in the project's target group. These are:- Parents of ageing adults with disabilities > 120 (20 people in each partner country)- Family members of ageing adults with disabilities > 60 (10 people in each partner country)- Guardians of ageing adults with disabilities > 60 (10 people in each partner country)Expected results of the project on participants are:- Increased knowledge, competence, and skills of the trainers/experts.- Increased knowledge, competence, and skills of family members and legal guardians of ageing adults with disabilities.- A greater understanding of the challenges and changes in cognitive capacities; physical abilities; social support networks; physical health of ageing adults with intellectual disabilities.- Increased knowledge, competence, and skills of parents, family members and legal guardians of ageing adults with intellectual disabilities for positive reinforcement, a strong sense of self-worth, confidence.- Increased ability to handle stress, limitations, changes in cognitive capacities, physical abilities; social support networks; physical health of ageing adults with intellectual disabilities.- A greater understanding of facing and overcoming challenges; knowing how to ask for help and professional support.- Increased knowledge, competence, and skills of parents, family members and legal guardians of ageing adults with intellectual disabilities for positive reinforcement, a strong sense of self-worth, confidence.- Increased ability to handle stress, limitations, changes in cognitive capacities, physical abilities; social support networks; physical health of ageing adults with intellectual disabilities.- A greater understanding of facing and overcoming challenges; knowing how to ask for help and professional support.- Increased knowledge, competence, behaviour, and skills of parents, family members and legal guardians of ageing adults with intellectual disabilities by using online learning HUB.- A greater understanding of the policy-based solutions that the project provided on ""elderly care"" and ""intellectual disability"".- Increased awareness of the lack of supportive services for parents, family members and legal guardians of ageing adults with disabilities.- Increased knowledge our the effectiveness and relevance of the project with reached goals, developed project results and gathered feedback.Outcomes of the PMI activities are: - Project management guideline- Effective communication strategy - Dissemination plan - Dissemination report - Internal quality evaluation plan - Quality evaluation report - Paper brochure of project results - Dissemination materials - Advisory board meeting reports- Multilingual web platform - Sustainability plan- Sustainability report - Progress/interim and final report of the project"