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<< Background >>According to OECD research, by 2018, in the EU, around 7% of the population (over 60) have dementia. Studies foresee that this percentage will rise to over 8% by 2040 due to population ageing; the higher the number of elderly people in a country, the bigger the proportion of people with dementia.During the COVID-19 pandemic, everyone has been negatively affected by the crisis, but the more vulnerable have been disproportionately impacted. Many people with dementia have been experiencing a worsening of symptoms due to lack of access to care and social isolation.Moreover, adults and caregivers looking after people with dementia have experienced an intensification in stress and burden for both the lack of knowledge on the behavioural and attitudinal changes that characterise dementia and the anti-COVID restrictive measures that have forced everyone at home. Amongst the stressors, physical, emotional, and economic pressures are the ones that are affecting the most informal carers. For this reason, greater support for them is needed, including education on how to assist better in caring, a higher understanding of dementia itself, and the acquisition of educational methodologies to enable the engagement of people with dementia in cognitive activities.With this project, we aim to provide support to all those adults who look after people with dementia on a daily basis, with a specific focus on relatives, legal guardians, and informal carers, by developing useful training materials to decrease the physical, emotional, and economic burden to the families with suffering patients.The direct target groups of this project will be adults and relatives who are informal carers of people suffering from dementia.Beneficiaries will be people with dementia, including its associated diseases, NGOs working with senior citizens or dementia or Alzheimer's disease, nursing home facilities, residential care facilities, social workers and nurses, and volunteers providing assistance to people with dementia.<< Objectives >>Specific objectives of InfoCARE will be:- To provide families, adults and legal guardians of people suffering from dementia with useful tools, tips, and activities based on non-formal education (R1);- To raise awareness on dementia and its symptoms amongst their families and caregivers, and in the society;- To develop ad-hoc training contents based on a strong working methodology and NFE (R1);- To improve the social interaction between people suffering from dementia and their informal carers and families. specific innovative devices, such as Amazon Echo Show or Spot and Google Nest Hub (R2),- To increase digital skills and literacy amongst target groups;- To enhance caring and assistance conditions for caregivers;- To create a network between informal carers of people with dementia through support groups (R3);-To diminish the stigma surrounding people with dementia through the creation of innovative activities and the extensive use of new technologies and NFE.- To implement 2 piloting activities to directly involve the target groups, that will therefore provide useful feedback for the development of high-quality material;<< Implementation >>To reach the project’s goals, we aim to develop the following results:R1 - Training on Cognitive activities - Mind-Stimulating Activities for Dementia Patients;R2 - Remote caring - Mind-Stimulating Activities through new technologies;R3 - Development of support groups for relatives and legal guardians of people with dementia.Specific activities will be developed to reach goals and objectives:- Definition of an ad-hoc working methodology, resulting from the careful analysis led by the project consortium, in order to meet the needs of the target groups (R1);- Development of 4 modules which constitute the content of the Training (R1);- Adaptation of the activities of the R1 so that they can be performed through specific innovative devices, such as Amazon Echo Show or Spot and Google Nest Hub (R2);- Providing digital literacy support for the informal carers (R2);- 3 piloting activities involving at least 75 pax;- 10 case studies of successful support groups (R3).5 Transnational Project Meetings (TPMs) will be organised to assess strategic milestones of project outcomes, to validate working methodologies, perform interim quality and budget control, and reinforce the transnational partnership.<< Results >>The project results that will be implemented are the following:R1 - Training on Cognitive activities - Mind-Stimulating Activities for Dementia Patients; implemented with the extensive support of non-formal education. It will consist in the development of 4 Modules containing useful activities to stimulate the cognitive abilities in patients with dementia in case they deteriorate. A pilot activity will be implemented to test the materials and gather useful feedback from the target groups in order to deliver high-quality material.R2 - Remote caring - Mind-Stimulating Activities through new technologies; adapting the activities of R1 in a way that they can be performed remotely with the support of new technologies and devices such as, Amazon Echo Show or Spot and Google Nest Hub. In this way, we will provide a practical response to the COVID-19 restrictive measures of social distancing. A pilot activity will also be performed with the target groups.R3 - Development of support groups for relatives and legal guardians of people with dementia. A training to support informal caregivers to create support groups, in order to share experience, best practices, and to encourage them to overcome the stigma surrounding people with dementia. It will consist of 4 Modules and a pilot training at the end of which each partner will collect two best examples of support groups in their community, for a total of at least 10 case studies.All the deliverables and project outcomes will be produced in English and translated into project partners’ national languages to enhance their shareability and exploitation.To ensure a smooth and flawless implementation of PMI activities and project results, 5 TPMs will be organised at key project milestones, as further described in the dedicated section.The 5 Multiplier Events will make sure that all the beneficiaries, stakeholders, and potential future users of the project results will be reached, therefore producing a greater impact and ensuring longer-term sustainability, even after the project funding ends.Dissemination activities will be organised and implemented by all the project consortium according to specific roles in the project, which will be further described in the Sharing, Promotion and Use of the Project's Results section.
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