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In all the EU countries, rehabilitation centres specialised in the support of children with visual impairment have more and more cases of children with central visual disorders and a low vision. Our organisations have already developed methodologies and procedure for the support of children for which the visual impairment is due to a dysfunctioning of the eye, as an organ. When the visual impairement is caused by a cererbral background, the impact for children is totally different for the daily life and compensation means we use usually doesn't work. There are more and more cases and this constat is due to the improvement of medical knowledge, and that we didn't identify before the causes of their visual impairment. This is a real issue for all the rehabilitation organisations in Europe, which want to develop/set up a process of evaluation and support, as a standard for our organisations. Our experience with these children show us that they need to have a specific approach in the comprehension of the impact of their disabilities and in the support modalities to set up. And despite the improvement of scientific knowledge on this question, modalities of support are too often some individual processes, without concertation and very isolated, locally. It is important to work together on the development of a coherent and pluridisciplinary process at EU level. In consequence, the objectives of CVI Project were to gather all the experiences of the partners and to develop a common process and common tools to improve the support of visually impaired children with cerebral visual impairment. The partnership is composed of 8 organisations from Europe and one from Quebec, all are specialists in the rehabilitation of visually impaired people. Among the 9 partners, 5 of them are french speaking (MFAM, IRSAM, CRDV from France, IRSA from Belgium and INLB from Longueuil in Quebec). The 4 other organisations are coming from Spain (2), The Netherlands and Croatia. The partnership has developed : - a protocol of assessment for a pluridisciplinary assessment of central visual disorders, working with different professionals : ophtalmologists, orthoptists, neuropsychologists, working with existing tools already used, and adapted to the group when necessary. - A handbook to give the knowledge of the process, the referral to the tools used, and how it works, with the contents of the tools developed in the project.- A questionnaire for relatives and surrounding of the children to support the assessment of the children. -An individual passport in which could be described simply for the environnement the impact of disorders in the life of the child, and also with a key card, a template layed out in A5 format to know more about the context of the child concerned. - A guide (called training course) to enable the professionals to use in a suitable way the outcomes of the project for the benefit of these children. The impact of this project is very important and the number of professionals concerned by these developments is huge. with difficulty to count approximately this figure, we know that at least in the francophone network (composed of 33 organisations in francophone countries), this is approximately 5000 professionnals concerned near or far by the developments. We can say that the impact is very huge in consideration with also the other EU countries
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