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reMIND- Reinforcing Carers Capacity to Deal with Dementia

Funder: European CommissionProject code: 2021-1-ES01-KA220-ADU-000027081
Funded under: ERASMUS+ | Partnerships for cooperation and exchanges of practices | Cooperation partnerships in adult education Funder Contribution: 231,695 EUR

reMIND- Reinforcing Carers Capacity to Deal with Dementia

Description

"<< Background >>Dementia describes a cognitive impairment that causes progressive decline in brain function leading to decline in cognitive and, eventually, physical capabilities. It affects memory, thinking, orientation, comprehension, calculation, learning capacity, language, judgement and significantly interferes with a person’s ability to perform daily activities leading them to long-term care needs. There are many different types of dementia being Alzheimer the most common type contributing to ≈70% of the cases.World Health Organisation estimates 48 million people affected worldwide, number that can reach 76 million in 2030 and almost triple in 2050 to 135.5 million. Only in Europe, according to EU-28 reports, it is estimated that by 2030 nearly 14 million will have some form of dementia, rising to over 18 million by 2050. The fact that dementia is strongly associated with age makes population ageing the main factor associated with the increasing prevalence of dementia, affecting in large scale the southern Europe.Informal carers are the most important source of care for people with dementia. In Spain (such in most partner countries) about 80% of the care is provided by family, friends and neighbors, with over 70% of informal carers being women. Intensive caregiving is associated with a reduction in labour force attachment for caregivers of working age, higher poverty rates, and a 20% higher prevalence of mental health problems. Many EU countries have implemented policies to support family carers with a view to mitigating these negative impacts. The ""Spanish National Plan on Alzheimer's and other dementias 2019-2023"" recognizes as fundamental the support to informal caregivers of dependent people in their homes and the reinforcement of the mental health component in the networks of Primary and Continued Health Care. A similar approach is included in the national dementia strategies of all the countries involved in the project.There is often a lack of awareness and understanding of dementia, resulting in stigmatization and barriers to diagnosis and care. Left unaddressed, dementia could represent a significant barrier to social and economic development.<< Objectives >>Having in mind the problems & gaps identified, the project main OBJECTIVE is:> Improve the well-being of people living with dementia and of the people that cares for them, helping to create an environment where all (people with dementia, caregiver's and communities in general) can be better prepared to address the overall care required to enjoy a better overall quality of life. This general objective is achieved by creating and developing a pilot and replicable innovative community-based care ecosystem in order to stimulate public awareness and information, to increase formal and informal caregivers’ capacity, and to support and encourage carers and persons with dementia type diseases in their daily life and action.In total accordance to the recognition of dementia as a public health priority (2017-2025, Global Action Plan response to dementia adopted by EU and World Health Assembly), “reMIND” project aims to improve the lives of people with dementia, their families and caregivers, while decreasing the impact of dementia on communities with a focus on multisectoral collaboration, equity, human rights, empowerment, prevention, and service integration across the care continuum.To this extent, a set of SPECIFIC OBJECTIVES are defined to address the NEEDS of the Target groups (public in general, communities, caregivers, caretakers, entities of the social care and well-fare):> Increasing dementia awareness, inclusion & friendliness.Reducing the risk of dementia> Improving diagnosis and care> Supporting dementia carers> Enhancing health information and care systems for dementia > Fostering research and innovationTRANSNATIONALITYTo achieve the objectives, which are an important common cause, transnationality is set for assuring a wider EU perspective on the reflection & discussion on project topics, on sharing & exchange of knowledge & best practices, and where entities with homologous & complementary background can allocate relevant learnings, expertise & experience in project’s development and thus on the envisaged innovation. Further, it will allow building a pilot network for supporting community-based care ecosystem & the best dissemination of results at larger level.<< Implementation >>Along 24 months, a partnership composed by public and private institutions from Portugal, Spain, Italy, Greece and Poland, will be responsible to address project objectives through the implementation of a sequent and interconnected plan of activities, involving and benefiting directly more than 1000 people (> 500 with less opportunities) and more than 200 caregivers and staff. Indirect beneficiaries, namely through dissemination, communication measures, web-based tools, and mobile APP is expected to reach a much larger number, not less than 5000.> reMind Caregivers: A Capacity Building Programme (training for trainers, training for caregivers, and technical seminars) oriented to informal, formal and professional caregivers from the community and relevant organisations. It aims to purposefully increase and adjust knowledge, skills and capacity for consistent, systematic and reliable care supporting towards caretakers well-being, but as well towards caregivers own personal and psychological well-being.> reMind Information & Awareness: a complete communication campaign (online, face-to-face, events, and reMIND mobile App) through which the community, its institutions, families and people in general are informed and sensitized about facts and notions about the disease, its impacts in the affected persons, families and society in general, factors and behaviours of risk (prevention); tips and practices for understanding the disease and for caring about people with dementia; and about services available and the entities that can give support.> reMind Dissemination: Having in mind the pilot nature of the project and being its rationale strongly representative of the needs of many other communities all over Europe, a solid dissemination strategy is then fully justified, useful and pertinent. The partnership is highly committed in the development of this strategy, seeking to support the transfer and the appropriation of the knowledge, tools and practices by third parties that can benefit from project’s experience. As a whole, it implies the creation of a framework for lobbying, with focus on influencing integrated caregiving and well-fare community-based systems and policies at local, national and EU level.“reMind” partners believe enthusiastically that project proposal has the power to change positively the communities social care and well-fare systems and the issues addressed. This motivating idea is the compelling force behind all of “reMind” products and results. With this in mind, and with the intention of supporting communities, its organisations, caregivers and caretakers, the project should result on a free global community-based caring model, accessible for all.<< Results >>1) reMind INFORMATION & AWARENESS: A set of massive public communication campaigns (online, face-to-face, events, publications, press, media, and reMIND mobile App). The campaigns will be divided:> 1ST EDITION: directed to the community, its institutions, families and people in general, through which they are informed and sensitized about facts and notions about the disease, its impacts in the affected persons, families and society in general, and having a strong focus on prevention by addressing in a comprehensive way the factors and behaviours of risk; > 2ND EDITION: directed to the community, its institutions, families and people in general, but mainly to caregivers (formal, informal and professional) and caretakers. This 2nd edition will focus as well the community based social-care and well-fare system being implemented (Dementia Inclusive & Solidary Community) in the frame of the project (under reMind Community result);2) reMind CAREGIVERS: A complete Capacity Building Programme oriented to informal, formal and professional caregivers from the community and relevant organizations; increase and adjust knowledge, skills and capacity for consistent, systematic and reliable care supporting towards caretaker’s well-being, but as well towards caregivers own personal and psychological well-being. The “reMind Caregivers” Capacity Building Programme will be implemented in 3 different but interconnected lines:> reMind Trainers: a cycle of 2 training actions will be held at transnational level. These activities are specifically designed for trainers (Training of Trainers) and the respective training contents will be developed under the respective Intellectual Output (IO2) and implemented through the learning, training, teaching activities C1 & C2. The participants (trainers from each of the partner regions and communities) will be later on responsible for training the caregivers;> reMind Formal & Informal Caregivers: These activities, to implement locally at each partner region, will be led by the trained trainers above, and will be specifically designed for formal & informal caregivers. Again, built under IO2 it will be implemented through the LTT C3, C4, C5, C6, C7.> reMind Professional Caregivers: These activities, implemented in the frame of several events to be held in the frame of the project (multiplier events, seminars, transnational project meetings), should allow professionals from the health care and well fare systems to exchange views, experience and practices, while updating their knowledge through the participation of experts.3) reMind COMMUNITY: The core pillar of the project is the development of an innovative pilot and replicable community-based care ecosystem, to be powered by a network of public and private institutions and civil society representatives established much beyond project partnership. A Dementia Inclusive & Solidary Community, capable for embracing a social transformation proposal and qualified for comprehensively supporting caregivers and caretakers, thus involving the entire community in the inclusion and emancipation of all individuals.This result includes several integrated “services”, such as help-desk, helplines, information system, and a reMIND mobile App for caregivers and caretakers, among other. Further detail described under IO3;4) reMind SEEDS: Considering project’s pilot nature and being its rationale strongly representative of the needs of many other communities all over EU, a solid dissemination strategy is then fully justified, and should be considered as one of the main results of the project. It implies the creation of a framework for lobbying, with focus on influencing integrated caregiving and well-fare community-based systems and policies at local, national and EU level. The strategy seeks to support the transfer and the appropriation of he knowledge, tools and practices by third parties allowing and facilitating those in in benefiting from project."

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