IRSA
2 Projects, page 1 of 1
assignment_turned_in ProjectPartners:Fondazione Istituto dei Sordi di Torino ONLUS, IRSA, Lietuvos kurciuju ir neprigirdinciuju ugdymo centras, GROUPEMENT DES ASSOCIATIONS PARTENAIRES D ACTION SOCIALE, CIUSSS +5 partnersFondazione Istituto dei Sordi di Torino ONLUS,IRSA,Lietuvos kurciuju ir neprigirdinciuju ugdymo centras,GROUPEMENT DES ASSOCIATIONS PARTENAIRES D ACTION SOCIALE,CIUSSS,Liceul Tehnologic Special pentru Deficienti de Auz Cluj-Napoca,ASSOCIATION DE PATRONAGE DE L'INSTITUT REGIONAL DES JEUNES SOURDS ET DES JEUNES AVEUGLES DE MARSEILLE,Institut Public la Persagotiere,FAPAS (Federación Andaluza de Familias de Personas Sordas),VYV 3 Pays de la Loire - Pôle Accompagnement et SoinsFunder: European Commission Project Code: 2019-1-FR01-KA202-062308Funder Contribution: 84,170 EURIn our society, deaf children are confronted to the problem of communication with all their surrounding. The technology of cochlear implant gives the possibility to deaf children to access to the comprehension of hearing people and so also to access to oral language to be understood. This technology is used all around Europe, not at the same level, because of the cost, but more and more children can benefit from the cochlear implants. Specialised institutions for deaf ensure the rehabilitation process necessary to improve the comprehension and oral language (multidisciplinary team composed of ENT specialists, neuropsychologists, speech therapists, social workers, etc. )In the same time, the development of this technology has revealed that 30% of the beneficaries can not develop oral language, and so revealed neurolinguistic disorders. It is very difficult to assess and to quantify some of these disorders. The work of specialists requires significant multidisciplinary cooperation and regular observations. This project will enable this collaborative work to give at EU level a better understanding of practices, explorations and materials used in the support of these children. Even though the objective is to produce a protocol of assessment and rehabilitation for a multidisciplinary team to improve the support of these children, this step of explorations is very important to get the good knowledge of the situation in Europe. We will develop two main times of training for participants, one of this event will be to understand the explorations of all the partners and to introduce the question of language disorders to define a consent on the definition. The 2nd one will be more focused on clinical cases, giving a good comprehension of the situation. That will provide a presentation of practices and explorations at EU level, with the implementation of a canadian partner, who get better results in the development of oral language. Their practicies and the North American situation will provide an added-value in the comprehension. In Montreal, Institut Raymond Dewar which follows the children with cochlear implants has pointed out only 3 situations of problems of development of oral language among the 108 deaf children implanted between 2015 and 2018. Such results are great opportunities for our partnership to know more about what is working practically. 20 participants will attend each training event - they will be representative of the question in their organisations and there will be ENT specialists, neuropsychologists, psychologists, social workers, speech therapists, specialised teachers, all the professionals which form the multidisciplinary team in the support of these children. The outcomes of the project will give the possibility to continue in the development of a protocol of assessment and rehabilitation for professionals (participants mentioned) working with these children, in a development of innovation, for the benefit of deaf children and their parents.
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For further information contact us at helpdesk@openaire.euassignment_turned_in ProjectPartners:UEMC, IRSA, Institut Nazareth et Louis-Braille, Koninklijke Visio, MUTUALITE FRANCAISE ANJOU MAYENNE +6 partnersUEMC,IRSA,Institut Nazareth et Louis-Braille,Koninklijke Visio,MUTUALITE FRANCAISE ANJOU MAYENNE,ASSOCIATION DE PATRONAGE DE L'INSTITUT REGIONAL DES JEUNES SOURDS ET DES JEUNES AVEUGLES DE MARSEILLE,COMITE COMMUN Activités Sanitaires et Sociales CENTRE DE REEDUCATION POUR DEFICIENTS VISUELS,IECSCYL,NCBI,FUNDACION ASPAYM CASTILLA Y LEON,Centar za odgoj i obrazovanje Vinko BekFunder: European Commission Project Code: 2015-1-FR01-KA202-015120Funder Contribution: 296,419 EURIn all the EU countries, rehabilitation centres specialised in the support of children with visual impairment have more and more cases of children with central visual disorders and a low vision. Our organisations have already developed methodologies and procedure for the support of children for which the visual impairment is due to a dysfunctioning of the eye, as an organ. When the visual impairement is caused by a cererbral background, the impact for children is totally different for the daily life and compensation means we use usually doesn't work. There are more and more cases and this constat is due to the improvement of medical knowledge, and that we didn't identify before the causes of their visual impairment. This is a real issue for all the rehabilitation organisations in Europe, which want to develop/set up a process of evaluation and support, as a standard for our organisations. Our experience with these children show us that they need to have a specific approach in the comprehension of the impact of their disabilities and in the support modalities to set up. And despite the improvement of scientific knowledge on this question, modalities of support are too often some individual processes, without concertation and very isolated, locally. It is important to work together on the development of a coherent and pluridisciplinary process at EU level. In consequence, the objectives of CVI Project were to gather all the experiences of the partners and to develop a common process and common tools to improve the support of visually impaired children with cerebral visual impairment. The partnership is composed of 8 organisations from Europe and one from Quebec, all are specialists in the rehabilitation of visually impaired people. Among the 9 partners, 5 of them are french speaking (MFAM, IRSAM, CRDV from France, IRSA from Belgium and INLB from Longueuil in Quebec). The 4 other organisations are coming from Spain (2), The Netherlands and Croatia. The partnership has developed : - a protocol of assessment for a pluridisciplinary assessment of central visual disorders, working with different professionals : ophtalmologists, orthoptists, neuropsychologists, working with existing tools already used, and adapted to the group when necessary. - A handbook to give the knowledge of the process, the referral to the tools used, and how it works, with the contents of the tools developed in the project.- A questionnaire for relatives and surrounding of the children to support the assessment of the children. -An individual passport in which could be described simply for the environnement the impact of disorders in the life of the child, and also with a key card, a template layed out in A5 format to know more about the context of the child concerned. - A guide (called training course) to enable the professionals to use in a suitable way the outcomes of the project for the benefit of these children. The impact of this project is very important and the number of professionals concerned by these developments is huge. with difficulty to count approximately this figure, we know that at least in the francophone network (composed of 33 organisations in francophone countries), this is approximately 5000 professionnals concerned near or far by the developments. We can say that the impact is very huge in consideration with also the other EU countries
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