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University of Humanistic Studies
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29 Projects, page 1 of 6
  • Funder: European Commission Project Code: 612438
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  • Funder: European Commission Project Code: 101137170
    Overall Budget: 6,231,130 EURFunder Contribution: 6,207,360 EUR

    While the need for integrating palliative care (PC) services into heart failure (HF) care has been well recognised, as of yet this integration lacks behind, especially when compared to cancer care. Currently, only 5-7% of patients with HF utilise PC services, due to a focus on optimising therapy and an unpredictable disease trajectory with exacerbations which hampers prognosis. As a result, many symptoms and concerns that are not directly related to HF are not recognised and undertreated and patients are often referred to PC services only at the very end of their lives. The RAPHAEL consortium sets out to take the next big step in integrating PC into HF care by integrating the RAPHAEL palliative care approach in existing HF care pathways. This flexible and patient centred approach starts with the identification of multidimensional symptoms and concerns, prioritise needs with patient and informal carer and formulate a proactive care plan. The symptoms and concerns will be monitored by the patient at home using the PAL@HEART application. The app can be used to evaluate interventions, support communication and earl identify new or increasing needs. As a result, the care needs of each individual patient with HF are addressed faster and better, improving their quality of life and autonomy. Moreover, this will lead to a reduction in emergency hospitalisations, unburdening the healthcare system and reducing costs. The RAPHAEL project sets out to adapt the RAPHAEL approach to HF care within a European context and test and validate its (cost-)effectiveness via a feasibility and large-scale evaluation study performed in 7 EU countries, the UK and Switzerland. It brings together experts in palliative care, cardiology, and primary care as well as professional organisations and patient representatives. Together the RAPHAEL consortium is uniquely situated to demonstrate the (cost-)effectiveness of the RAPAHEL approach and launch its implementation in Europe and beyond.

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  • Funder: European Commission Project Code: 101094714
    Overall Budget: 2,541,520 EURFunder Contribution: 2,541,520 EUR

    Ethics and integrity are key dimensions of excellence in research and crucial for public trust in science. BEYOND will reinforce efforts to promote adherence to the highest standards of research ethics and integrity (RE/RI) and prevent research misconduct (RM) by developing and disseminating regulatory and educational interventions that elucidate institutional and individual responsibilities for ensuring and fostering research environments conducive to ethical research. To that end, BEYOND will adopt a complex ecosystemic perspective on research ethics and integrity that recognizes the multiple responsibilities of researchers and other stakeholders to enrich the overly simplistic Bad Apples approach that underpins most existing measures to prevent research misconduct. BEYOND will EXPLORE the existing literature on behavioural ethics and moral psychology as well as the socio-economic consequences of research misconduct and ENGAGE all involved stakeholders in a public consultation. To GUIDE and EQUIP all stakeholders in the research ecosystem, BEYOND will utilize this knowledge to develop 1) psychologically informed contextual interventions to promote RE/RI and prevent RM from the perspective of individual and institutional responsibilities, 2) methodologies to measure the short-, medium- and long-term impact of RE/RI trainings on attitudes and behaviours of students and researchers, 3) a best practice manual and guidelines to supplement standard operating procedures from a complex research ecosystemic perspective as well as a 2030 roadmap towards improving the RE/RI culture and 4) new training materials and tools to supplement existing educational efforts. BEYOND will mobilize all stakeholders via the three thematic networks involved in the consortium (ENRIO, EUREC, The Guild) and the stakeholder advisory board to ensure widespread dissemination of results and facilitate their institutional uptake and embedding.

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  • Funder: European Commission Project Code: 956919
    Overall Budget: 4,033,980 EURFunder Contribution: 4,033,980 EUR

    Over the last decade, liberal democracies in Europe have been shaken to their core by the rise of national populisms. This puts strong pressure on all forms of solidarity, especially as they cross ethnic-cultural boundaries. The increasingly successful capture of the notion of solidarity by radical right, anti-liberal democratic forces is testimony to this. The challenge for European democracies is to identify the conditions under which solidarities in diversity can be nurtured. To address this urgent challenge, the European Training Network “Solidarity in Diversity” (SOLiDi) develops a training and research program that is focused on how to generate solidarities across cultural boundaries, taking the proximity of citizens with different ethnic-cultural backgrounds in specific places and the practices they engage in as starting point. Building on the strengths of the interculturalist paradigm, SOLiDi will originally contribute with an intersectional understanding of how place-based solidarity practices are shaped by and can work around entrenched social inequalities and unequal power relations. To that end, SOLiDi brings together a group of international scholars from sociology, geography and educational science and a wide range of non-academic partners that are active in different sectors. SOLiDi will train 15 early stage researchers in relevant theories, research methods and ethics and paradigms of social change such as public pedagogy and policy and organisational change to study practices of place-based solidarities in diversity in different geographical, policy and organisational contexts. The aim is to articulate a new vision on solidarity adapted to superdiverse societies and to better equip professionals and organisations with adequate and innovative tools for facilitating solidarity in diversity. SOLiDi aims are in line with SDG10 “Reduced Inequalities” and Societal Challenge 6 ‘Europe in a changing world - Inclusive, innovative and reflective societies’.

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  • Funder: European Commission Project Code: 825731
    Overall Budget: 4,108,820 EURFunder Contribution: 4,017,820 EUR

    Every year around 4 million people die in the EU as a result of chronic disease and illness. Many will die in pain or distress, die alone, and die without appropriate health or social care. How we care for the dying is perhaps the most pressing personal, social and public health issue of the 21st century. To address this problem, the iLIVE project will demonstrate the effectiveness and cost-effectiveness of two innovative interventions in end-of-life care. Its objective is to develop and evaluate: • a digital clinical tool to optimize medication management to relieve symptoms that occur at the end of life • an international volunteer programme to support patients and their families, dying in the hospital iLIVE will also provide in-depth understanding of the concerns, expectations and preferences of dying patients and their caregivers and deliver the first Core Outcome Set for care of the dying. To realise this, we will perform a 10-country prospective cohort study of 2000 patients with a life expectancy of six months or less, across different settings, diagnoses, ages, genders, socio-economic and religious groups. The cohort study embeds two controlled clinical trials. iLIVE is initiated by the ‘International Collaborative for Best Care of the Dying Person’, with worldwide membership. All iLIVE partners have direct access to care of dying patients and hold strategic posts in highly influential national and international bodies linking to policy and strategic decision making. iLIVE will deliver a set of tools and training programmes that are adaptive to different working contexts and informed by dying patients and their caregivers. With an extensive dissemination strategy, iLIVE will significantly contribute to reducing the suffering and isolation of dying patients and their families, improve clinical guidelines, and decrease societal and economic burdens around care for the dying in Europe and beyond.

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