ASOCIACIÓN PROVINCIAL DE FAMILIARES DE PERSONAS CON LA ENFERMEDAD DE ALZHEIMER Y OTRAS DEMENCIAS DE CASTELLÓN
ASOCIACIÓN PROVINCIAL DE FAMILIARES DE PERSONAS CON LA ENFERMEDAD DE ALZHEIMER Y OTRAS DEMENCIAS DE CASTELLÓN
2 Projects, page 1 of 1
assignment_turned_in ProjectPartners:UPV, BU, Πανεπιστήμιο Κρήτης – Τμήμα Βιολογίας, SLOVENSKO ZDRUZENJE ZA POMOC PRI DEMENCI - SPOMINCICA ALZHEIMER SLOVENIJA, Turkiye Alzheimer Dernegi +1 partnersUPV,BU,Πανεπιστήμιο Κρήτης – Τμήμα Βιολογίας,SLOVENSKO ZDRUZENJE ZA POMOC PRI DEMENCI - SPOMINCICA ALZHEIMER SLOVENIJA,Turkiye Alzheimer Dernegi,ASOCIACIÓN PROVINCIAL DE FAMILIARES DE PERSONAS CON LA ENFERMEDAD DE ALZHEIMER Y OTRAS DEMENCIAS DE CASTELLÓNFunder: European Commission Project Code: 2017-1-ES01-KA204-038608Funder Contribution: 225,111 EURWhen a person begins to develop Alzheimer Disease (AD), they may begin to have difficulties living independently. Episodes occur in which the relatives of the affected person can detect difficulties in the administration of money, driving a vehicle or the ability to live alone on the part of the person suffering from cognitive impairment. In the early stages of AD, some people still believe that they can function without problems, and may even insist that they are well and that it makes no sense to try to interfere with their lives AD-AUTONOMY is launched with the main objective of increasing the competences (attitudes, skills, knowledge) of Persons with Initial/Mild Alzheimer (PwA), Families and Caregivers, about how to improve Quality of Life of PwA through Autonomy through an innovative training program The project has the next specific objectives: • Aware and motivate this group on the importance of maintaining the autonomy of people, within a security and support environment, as an element of QoL for PwA and their families. • To increase the Autonomy of PwA for taking decisions and live independently with a global Wellbeing and QoL approach. • Transfer good practices and recommendations to this group to promote Autonomy through training in the execution of daily routines • Transfer tools, including Apps and Assistive Technologies, to support the processes of empowering and increasing Autonomy of PwA. • Transfer techniques for the emotional management of impairment associated with illness and related problems, based on the concept of mindfulness. • Involve professionals and supports In order to cover all the needed competences, the consortium includes: • 3 entities working in the field of supporting PwA (AFAC, SPO, Derneği), involving a big collective of persons, families and professionals. These organizations have own staff and also established cooperation with experts in their countries in order to give technical support to the University and Technological Centre when adapting the outputs to PwA. • 3 Universities (UPV, BU, AUTH) specialized in development and application of ICT solutions adapted to collectives with special needs, specially Alzheimer Through the execution of this Project the next results will be obtained; • Co-Created Methodological Guide will be developed, with the direct participation of End Users, with the main objective of determining the key contents, methodologies and tools needed for creating and improving the critical competences of persons with Alzheimer, their supports (families and professionals) and professionals regarding Autonomy for increasing their Quality of Life. • Training Materials addressed to persons with Alzheimer, families and professionals for facilitating the implementation of Autonomy in a safe and supported environment. • Designed Experiential Training Activities addressed to persons with Alzheimer, families and professionals for facilitating the implementation of Autonomy in a safe and supported environment. • Development of an e-Training Platform, including awareness, training contents and references or links to existing ICT Tools/ICT Assistive Technologies solutions for supporting the implementation of Training Materials and Designed Experiential Training Activities. • Creation of 5 AD-AUTONOMY UNITS in all the countries of the Consortium in order to ensure the sustainable exploitation of the project after the project lifetime. • Development of Dissemination Actions addressed to the European collective related to persons with Alzheimer. VALIDATION ACTIONS will be organized on each country, based on the practical implementation of Training Materials, Designed Experiential Activities and e-Training Platform, involving about 30 persons, including persons with Alzheimer and families, and 10 caregivers. Evaluation and analysis will be done. Project Activities will be completed with Management and Implementation actions AD-AUTONOMY will benefit a number of persons during the project lifetime: • 150 persons with Alzheimer and their families will be trained (30 in Spain, United Kingdom, Slovenia, Turkey and Greece), through their participation in the validation actions of Training Materials, Designed Experiential Training Activities and e-Training Platform. • 50 professionals (10 in Spain, United Kingdom, Slovenia, Turkey and Greece), will be trained, through their participation in the validation actions of Training Materials, Designed Experiential Training Activities and e-Training Platform. • 1500 persons with Alzheimer, families and professionals (300 in Spain, United Kingdom, Slovenia, Turkey and Greece), will be aware, through the dissemination actions to be carried on through the project website, newsletters, leaflets, etc.
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=erasmusplus_::bcde0da767973d8067c17abd5a697282&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=erasmusplus_::bcde0da767973d8067c17abd5a697282&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.euassignment_turned_in ProjectPartners:SPOMINCICA, ALZHEIMER SLOVENIJA, Turkiye Alzheimer Dernegi, ASOCIACIÓN PROVINCIAL DE FAMILIARES DE PERSONAS CON LA ENFERMEDAD DE ALZHEIMER Y OTRAS DEMENCIAS DE CASTELLÓN, WH Gelsenkirchen, ETERNIS +1 partnersSPOMINCICA, ALZHEIMER SLOVENIJA,Turkiye Alzheimer Dernegi,ASOCIACIÓN PROVINCIAL DE FAMILIARES DE PERSONAS CON LA ENFERMEDAD DE ALZHEIMER Y OTRAS DEMENCIAS DE CASTELLÓN,WH Gelsenkirchen,ETERNIS,UPVFunder: European Commission Project Code: 2020-1-ES01-KA204-083089Funder Contribution: 224,255 EURWorldwide, around 50 million people have dementia (www.who.int), 10 million in Europe. Projections indicate an exponential growth in the following decades, increasing the severity of cases (2019 Alzheimer Europe Yearbook, Estimating the prevalence of dementia in Europe). Most advanced stages of the disease occur in GDS phases 6 and 7 (Global Deterioration Scale for the Assessment of Primary Degenerative Dementia). In Phase 6 there is a severe cognitive decline, incontinence, delirium, compulsions, anxiety or agitation, among others, and people require extensive help to do daily activities. In Phase 7 there is very severe cognitive decline, lost of the ability to speak or communicate and psychomotor skills, like the ability to walk (www.dementiacarecentral.com).The number of persons with advanced dementia (PwAD) living and receiving care in domiciliary environments is growing as their life expectancy grows and due to the deinstitutionalization trends where, according to the Quality of Life (QoL) Model, they should stay at their home as much as possible.AD at HOME project is launched with the main objective of increasing the competences (attitudes, knowledge, skills) of Carers on how to improve Quality of Life of Persons with Advanced Dementia (GDS 6-7) in domiciliary environments.Specific objectives:•To aware the target group about the effectiveness and impact of proper care for the QoL of both PwAD and Carers•To create and transfer guidelines and tools on how to;Implement existing innovative strategies for improving QoL of PwAD (GDS 6-7) in domiciliary environments, focusing in Non-Verbal Communication and Sensorial Stimulation.Adapt the main care tasks of PwAD (GDS 6-7) in domiciliary environmentsApply Assistive Technologies for improving QoL for PwAD (GDS 6-7) in domiciliary environments.•Increase competences of Carers for self-care to help them face the ethical challenges of caring, reduce the burden and prevent their burn out.According to that, the next results will be developed:I.O.1 Co-Designed Training SchemeA Training Scheme of the “AD at Home” Training Program will be developed with the direct involvement of potential END USERS (CARERS) as “experts” of the daily needs of PwAD in advanced stages (GDC 6-7) and their own needs. This way, END USERS will participate in the design process, helping to assure that the results achieved met all the identified needs. I.O.2 Training Package on Non-Verbal Communication and Sensorial Stimulation for Persons with Advanced Dementia in Domiciliary Environments (HUMANITUDE)A Training Package will be developed including information and applied knowledge about how to implement existing innovative solutions in the field of Non-Verbal Communication and Sensorial Stimulation for PwAD (GDS 6-7) in domiciliary environments.I.O.3 Training Package on Adaptation of Care Tasks to Advanced Dementia in Domiciliary Environments (ALZ.DERNIGI)A Training Package will be developed including information and applied knowledge about how to adapt the main Care Tasks to Advanced Dementia (GDS 6-7) in domiciliary environmentsI.O.4 Training Package on Assistive Technologies for improving the Quality of Life of Persons with Advanced Dementia in domiciliary environments (IAT)A Training Package will be developed including information and applied knowledge about existing Assistive Technologies which can improve the Quality of Life of Persons with Advanced Dementia (PwAD, GDS 6-7) and Informal Caregivers in domiciliary environmentsFinally, the aforementioned “AD at HOME e-Training Platform” (I.O.5) will be developed5 NATIONAL MULTIPLIER EVENTS will be organized, where all the project results will be introduced to the main national stakeholders.VALIDATION PILOT ACTIONS will be implemented in all countries with 80 CARERS of PwAD (20 in Spain, Slovenia, Turkey and France) where all the Training Packages including Training Materials and Experiential Training Activities will be put into practice and testedWe can distinguish among different kind of impacts:Short Term:- increase the competences of 80 CARERS (20 in Spain, Slovenia, Turkey and France) through their direct participation in the Pilot Validation Actions - 2.500 CARERS, Professionals working with Persons with Dementia and other Stakeholders (500 in Spain, Slovenia, Turkey, France and Germany) will be aware, through dissemination actionsLong Term: - During 5 years after the project completion, thanks to the work to be done by the Support Units, the project will increase yearly the competences of 200 persons including CARERS (50 in Spain, Slovenia, Turkey and France) through their participation in Training Courses - In the long term, 2.500 CARERS, Professionals working with Persons with Dementia and other Stakeholders (500 in Spain, Slovenia, Turkey, France and Germany) will be aware yearly during the 5 years after the completion of the project
All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=erasmusplus_::c9a599fe5298d8462e613e2eb14e7540&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eumore_vert All Research productsarrow_drop_down <script type="text/javascript"> <!-- document.write('<div id="oa_widget"></div>'); document.write('<script type="text/javascript" src="https://www.openaire.eu/index.php?option=com_openaire&view=widget&format=raw&projectId=erasmusplus_::c9a599fe5298d8462e613e2eb14e7540&type=result"></script>'); --> </script>For further information contact us at helpdesk@openaire.eu
